An encouraging verse sent by a friend...Psalm 73:26 "My flesh and my heart may fail, but God is the strength of my heart and my portion forever."

Monday, April 14, 2014

The Latest Updates

So much has been going on, and I now have a few minutes before Elyana's next feeding, taking my meds, and going to bed. Here are the latest updates... My latest diagnosis On Friday, we went to the ER because I was feeling breathless and just not right. I thought I needed more blood or had a pulmonary embulism; however, the problem was actually that my heart was enlarged and functioning at 1/3 capacity, allowing fluid to collect in my lungs among other places. This came as a big shock to me and Bob, but we were also grateful that we didn't ignore the symptoms. The diagnosis is postpartum cardiomyopathy, which means weakening of the heart post-partum. They don't know what causes this, but for many women who have it, the heart strengthens with a few months of medicinal intervention and rest. I am praying that I am 1 of those women and that this isn't a result of the chemotherapy I received 5 years ago. The medications I'm taking make it easier for my heart to do its job, and hopefully God will fully heal it. In the meantime, I'm supposed to be mellow, restful, and not allow myself to feel winded. This is a big adjustment for me (and our family). Oh, and I found out last weekend that my blood count is almost back up to normal...good news that came after a very discouraging day. Praise We came home from the hospital yesterday, and YES! I was able to go to Anderson's baptism. What a HUGE blessing! Thank You, God! It was a very special time shared with my parents, sibs who are in-state, and friends. We're very proud of this step of obedience that he took. I made it through the service but was definitely very ready for bed, feeling weak/fatigued. Today - I felt quite "normal" when I woke up this morning...amazing what a good night's sleep in bed with my hubby does for me! (and that's in spite of Elyana's night feedings!) It was wonderful to fall asleep in Bob's arms, something that can too easily be taken for granted. The morning was very tiring as we spent it going to the pediatrician's. (see below) But, I did it without heart flutters/breathlessness, and I took a good long nap this afternoon. By tonight, I'm definitely feeling quite weak, but I'm encouraged at the stronger start to the day. That is progress. I'm also so thankful that Mom is here helping us. It's ridiculous (and surprising to me) how little energy I have BUT I am so thankful that God is giving my body energy to make milk for Elyana. I have plenty. Doctor's visit for the kids - Elyana was checked today regarding whether my medications seem to be affecting her. So far, so good. She has gained weight and although they couldn't take her blood pressure (too little to get a good read), symptomatically, she seems to be unaffected. Please pray that my milk will continue to be good for her little body. Ethan was also checked today as he is working on week 4 of a cold that won't quit and it has settled in his lungs. He's now on antibiotics for 5 days and nebulizer treatments. When Ethan prayed at bedtime, he thanked God for the bubble-gum-flavored medicine, so obviously, it isn't bothering him. 8) The next few days will be spent resting between going out to get bloodwork done, having Elyana's weight checked, and a cardiologist visit. I am looking forward to being home tomorrow.

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